Venous Leak Symptoms And Cures

Morterwind

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Then i had an doppler exam
Do you have doppler exam with erection (after a shot) or on a flaccid penis?

If you had good doppler with a erected penis, and it shows no leak - stop worry about it.
 

ruskiczolg

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Do you have doppler exam with erection (after a shot) or on a flaccid penis?

If you had good doppler with a erected penis, and it shows no leak - stop worry about it.

Yes I did, but those injections hurt as hell, had a painful erection for the next 2 hours.
My confidence has been skyrocketing when I met my girl recently(no sex, but fooling around and erection lasting while passionately kissing for few minutes) but problem with loosing erection faster without stimulation persists (mainly touch, but visual stimuli might be enough if proper mindset), especially when standing but seems that to not such a big extend as when my anxiety was at it's top.
I guess it's my body being used to masturbating while laying/sitting for the last few years.
Also I am bit older so I might be already after my sexual peak.
There might be other reasons like pelvic floor balance etc.
Fortunately I can live with that
 
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ugfug

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Hello,

I have had venous leakage for two years.
I got it from jelqing.
After a long time of trial and error I have managed to achieve good strong erections through the use of cock rings.

I use progressively tighter rings, adding one after the other, to achieve a hard erection.
It takes a lot of practice and experimenting to get it right, but the result is that I can have hard erections fit for intercourse. This alleviates the need for a VED.

My advice would be to use lube to make things easier.
No longer than 30 minutes with tight rings, though with tight rings it is best to limit yourself to 20 minutes with them on.
It will hurt to start with, you will have discolouration, it will be colder, but it will get better with use.
Go for 5 to 10 minutes to start, build up from there.

I am not aware of anyone else that uses this technique.
Start with a loose ring, get aroused, kegel, stimulation, add tighter ring behind the fist, more of the same, add tighter ring behind the second, remove loose rings when good erection achieved. Gradually harder erection, gradually tighter ring. Use drugs to help if need be.

I will only discuss solutions, I will not dwell on the agony of venous leak, for my own mental health I must focus on solutions.
This is the only thing that worked for me.
Franktalk is a professional site for this.
 
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Pegasus

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So i take it this was medical diagnosed venous leak ? Did you do the doppler etc?

What is your hormone test result? Numbers please .

I take it you have tried kegels etc ?
 

ugfug

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Hi Pegasus thanks for getting back to me,

Yes it was a medical diagnosis, I spent the first year going from specialist to specialist.
We are very lucky in the UK to have great surgeons and Dr's on the NHS who treat us for free, although the delay can be significant.

They did a full hormone panel. I have 780ng/dl, which is actually quite good. The rest of the bloods were normal too, which is just a crucial. So that ruled that out.

I had a doppler which indicated significant leak, they followed up with
virtual cavernoscopy[FONT="Roboto",Arial,sans-serif] [/FONT]
(which they are relying on more now for its greater accuracy, dopplers are not that good at detecting venous leak according to the surgeons (tendency towards false negatives), it's a fascinating tool, very interesting technique).

With this they found severe venous leakage. They followed with MRI's and CT scans and identified scarring. The urologist (a specialist in complex penile surgery) who initially examined me said he could feel it and had experienced this before with 'jelqers', to his credit he was right.

The abnormal pressure of jelqing causes internal scarring reducing the elasticity of the tissue to the degree that it can't crimp off the veins, hence leakage. A similar mechanistic deficit can arise in peyronies. That tends to manifest in a different pattern though (in localised clumps), where I had it was typical of where it occurs with 'these reckless exercises' according to the surgeon. I was a bit relieved that he had experience of this, that I wasn't the only one.

So options were, VED or implant. I'm young so the hell with that, I was determined to overcome, and so I have, even though it's not ideal.

It was the worst thing I've gone through, I didn't know suffering until this, even talking about it is hard, but, I think, therapeutic.


I appreciate your input, but as said, I would like to focus on helping men here and coming up with solutions. Cock rings are not ideal, especially the time limit, but I can fuck with them and the have honestly saved my life.
 

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The urologist who performed this more extensive testing is a specialist in complex penile surgery, but he didn't suggest a specific surgical procedure that he can do for your particular issue? What types of complex penile surgeries does he actually do, or what kind of issue was he looking to find with the all of the tests that he could have actually done a surgery for?

In the end all he could recommend was a VED or an implant, the same stuff as a so called regular urologist. You mentioned in another thread that it was worth spending big bucks on advanced testing, since that was the only way to get better, but all of the advanced testing you had, with someone who specializes in complex penile surgery, resulted in only VED or an implant being offered as the ways to get better, both of which could be sought without spending big bucks on complex testing. In other words, based on your experience, why would big bucks on advanced tests be justified?
 

CUSP82

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Could you just think for one minute instead of being accusatory to the OP and the doctor; just maybe in this case with all the tests they found something they couldn't fix? Now maybe in other cases with all the tests they may find things that can be fixed on other guys but in this guys case sadly no. So if al the advanced tests show a guy can't be fixed but we wouldn't have known he can't be fixed without doing all the tests well since he can't be fixed doing all the tests was wrong. Dumb! ( but a hell of a last sentence don't ya think?)
 

ugfug

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Hi Regenerator,

Where the scarring is localised, within a discrete area, then it can occasionally be removed by surgical incision. This is (pretty much) what peyronies disease is.
My scarring was pronounced and covered a large area of the cavernosal bodies, to remove it would be practically impossible, very dangerous and in itself would lead to more fibrosis. Given that the fundamental problem is the lack of elasticity and malleability of fibrotic tissue preventing the crimping of the veins, this would just compound the problem.

Unfortunately, for venous leak there isn't anything reliable that you can do outside of pumps and implants. Embolisations are unreliable, they usually don't work long term and can actually do a lot of damage due to such a pressure increase. It's hard for them to gauge just what stemming a vein will result in, as I'm sure you can imagine.

Before you can make any decision as to how to treat things, you need to know what's wrong. I still wasn't 100% sure going in that it was venous leakage. The sad thing is, and this is why I'm so keen to reach out, that there isn't any cure just now. So, for me at least, focusing on the use of constriction rings is a way of moving forward. Such simple technology, and it's far from ideal, but it works.

I would recommend going to the best surgeon you can, the one with the most experience because they have the highest probability of getting in right. Go for one that does penile implants, one that deals with peyronies, one that operates every week.
Not just a urologist, a surgeon, and not just a surgeon that specialises in circumcisions or prostates, one that deals with complex penile surgery. These boys will cost a lot, they are in demand.
 
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Is peyronie's ever due to scarring in the cavernosal bodies? I was under the impression it was from scarring in the tunica albuginea. Plus they can feel it from a manual exam and of course peyronie's would typically cause curvature. If there were no curvature yet, you would think the urologist would do a manual examine to feel for scarring of the tunica albuginea before doing more complex testing in preparation from peyronie's surgery, which again would involve the tunica and not the cavernosal bodies. Is surgery ever performed to remove scarring from the cavernosal bodies? Before beginning testing, did he ask you about your symptoms and at least give you an idea of which issues he was testing for?

The other question which also might address Cusp's critique of my post was which issues does this urologist do surgeries for exactly? In other cases he might find something he could fix... so which issues exactly can he fix? Before encouraging someone to fork over a lot of cash for tests I would want to know what types of issues he could actually do something about. From what I've gathered, for almost all of these issues any surgery would be purely experimental.

Did he fill you in at all on which types of issues he can fix surgically besides peyronie's, and what types of success rates he has had?
 

CUSP82

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Doctor;Okay patient I can fix theses types of injuries
Patient Doctor what kind of injury do I have?
Doctor; I won't know until we conduct tests.
Patient; Well I don't want tests done and paid for if you can't fix my injury.
Doctor; Well I don't know what type you have
Patient; Well give me an idea of what you think I might have.
Doctor;I will not guess about a medical issue. I need tests to determine what it
is.
Patient; Well I don't want to sped the money if you can't fix it.
Doctor; well I don't know if I can fix it until I do tests to find out what it is
Patient; well if you do all these tests and you can't fix it I won't pay for it.
Doctor; get the hell out of my office.

Like I said; dumb.
 

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And that's why I asked if the doctor told him which types of injuries he could fix.
 

CUSP82

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And the doctor finds out what kind of injury the patient has how? By asking the patient of course! They always know. No need for tests just ask the guy with the problem.
Old rule of hole digging; when you find yourself in one stop digging.
 

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Do doctors typically ask questions first in order to point them in the direction of which types of tests to do, and which treatments that they might have to offer, or do they generally jump in with as many pay out of pocket tests as possible without asking questions or discussing treatment options?

But the most important question, which is something only the OP can answer, is if the doctor told him which types of injuries he can treat surgically, and success rates or risks of the potential surgical procedures offered.
 

ugfug

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Scarring can be on the bodies themselves. There can even be scarring on the dermis bad enough that the reduced skin elasticity can hinder erection. They can have this with burn victims. As long as there is scarring and that fibrotic tissue is reducing elasticity, then that is a form peyronies. It's just become synonymous with a bend and pain because that's what (understandably) concerns people most. There doesn't always have to have curvature or even pain. You can even have it and not know it, asymptomatic. Most cases actually resolve themselves over time.
They can feel the scar tissue, and he was sure of it upon first examination. The follow up tests are useful because they give greater insight into exactly where this scarring is, where it ends and at what stage it is at.

What they do is a progression from the minimally invasive to the most invasive to gather information if they think it is useful. So from interview, manual exam all the way up to injections and scans. Having said that, sometimes they only really know what’s going on when they open you up. Once they have this information they can decide on what course of action to take.

As for what he operates on, he does all complex penile surgery, reconstructive surgery from trauma, penile implants, removing all order of things men inject into themselves to make their penises bigger, burn victims, skin grafts…you name it. That’s why its such a specialist thing.
As to when they can and can’t intervene, well that’s case specific, it depends on many variables. In my case there was too much scarring, to remove it would cause more, and there is the risk to nerves, the vasculature, all the rest of the gunk.

Although my initial consultation was private and thus expensive, the rest was on the NHS, so it was free. (God bless socialist health care).
 
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Parallel

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Hi ufug, I have diagnosed VL but no detectable fibrosis. Do you think it is possible to have VL?
 

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Thanks for the info. You said that he ultimately found that scar tissue was dispersed throughout the cavernosal bodies, so I would assume that this was the scar tissue that he was sure of upon manual examination. Based on his manual examination, did he say whether he suspected that the scar tissue was in fact dispersed throughout the cavernosal bodies, or was he only sure that there was scar tissue, but didn't yet have an idea of where it might be? Also, based on the manual exam, did he suspect at all that the scar tissue was in fact spread out, or was this something he only talked about after the tests? Considering he was sure about the presence of scar tissue from the manual exam, it seems like he would have also had to have gotten a sense of where it was, and that it was spread out, especially considering that it was spread throughout the cavernosal bodies.

Did he comment on whether the removal of scar tissue from the cavernosal bodies in order to treat erectile dysfunction was something that he typically did do, and that he only didn't do it in your case because the scar tissue was spread out?
 

ugfug

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The scar tissue wasn't througout the cavernosum, it didn't run deep into the spongy core, so there are no issues with filling.
(As a side note, this can occur and can make installation of penile implants difficult, to the point they have to break through the scar tissue with rods...yuck!)

It was enough to prevent the flexibility needed to constrict the vessels, however, as the fibrosis is not neatly restricted to this layer, it also runs into the tunica (mine went up to the bucks fascia). It is by spanning the interface between tissues that it produces rigidity, this lack of malleability is the problem.

They can break up scar tissue anywhere, but it's a decision based on pros and cons and what you are trying to achieve. If it's deep in the cavernosum then you will need an implant because you'll have failure to fill rather than failure to retain. On the surface it is often removed, the Nesbit procedure is used if not (where they take a chunk out of the other side to corret a bend), within the layers above, amongst the vasculature and nerve bundles they can remove. There is no place they won't go. When it's extensive you have to consider how much damage you are likely to do in surgery. Is it worth it, what the chances of outcome. All attempts with different variables and odds. My case there was just too much, the chances of not doing more damage with surgical trauma too low to justify.
 

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Did he comment on how often he successfully surgically removed scar tissue in the treatment of erectile dysfunction, or considering that he had seen other men with injuries due to jelqing, how successful he had been fixing jelqing induced ed with surgery? Did he say anything about what kind of damage he most typically found from jelqing?
 

ugfug

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We did not discuss statistics, frankly, my only concern at the time was my own plight. The damage tends to be different from the more compartmentalised lumps of (traditional, lets say) peyronies, it tends to be more extensive and pervasive throughout the tissues. He wasn't surprised when he saw the cavernoscopy results.

We only briefly discussed outcomes of fibrosis removal, that if it was limited enough, it was worth attempting.

I do not have the statistics.