The Official Hard Flaccid Recovery Thread
- Thread starter ronjohn812
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Ha, I wouldn't say that at all. I don't think we've concluded anything other than we are all eager to get our penises back. Though pelvic floor tension is what the doctor who gave me alpha blockers insisted on and I thought "What a dolt". He is a 25 year veteran at one of the most respected hospitals in the United States, so maybe he does know a thing or two.
If it turns out that's it all along I will have to eat some crow and thank him.It does seem like a LOT of people with hard flaccid exhibit telltale symptoms of it, which is interesting. I think at the very least it exacerbates the situation. I've improved dramatically with the PT. And sacc recently posted that trigger point therapy was a big part of his recovery. I suppose time will tell.
I understand that there are nerves that run through the whole area down there. But I just have trouble believing that something I did with my penis, caused a condition with my pelvic floor, that caused a condition with my penis. I hope that makes sense. It seems more logical to me that I did something to something with my penis, thus causing my pelvic floor to have problems too.
HF...I think that there are multiple causes all leading to the same type of thing...our symptoms are so similar though we all got where we are in different ways
If anything it would be the other way around. I think an existing pelvic tension thing has to be there first, if it's even related. I think the actual body part that is injured isn't in the penis at all. My penis is fine, it's just got no damn blood in it because of something happening elsewhere. Considering everyone's symptoms, how everyone got it and the fact that cyclists and people getting shots into the perineum are getting it tells me the injury is somewhere in the perineum. Beyond that I've got no clue. But that's where all of the arteries, nerves and muscles that control everything in the penis live. There are no actual penis symptoms when you think about it. There is no blood, but that has to be a byproduct of something happening elsewhere. If it weren't you'd feel it and probably see it, like you do with every single other penis injury in the world.
The whole standing up/lying down thing needs to be considered. Think about it. The penis hangs on the outside of the body and you can pretty much see everything superficial with the naked eye. Nothing significantly changes about the way the penis hangs or lives outside the body between sitting and standing. So you must look elsewhere, to places you can't see. Start with places which are most obviously changed between lying down and standing, and get more obscure from there. First one is obvious, the legs. You don't use your legs when lying down, only when you stand up. I have the abstract of a medical report which describes a test for femoral artery compression that involves manually stopping blood flow to the penis. Maybe it's that. Who the hell knows.
What about your urethral pain? One of the other guys on this thread, the one with hard flaccid but no ED whatsoever, also experiences discomfort in his penis for a week after having sex. In his penis, not his perineum. I dont know man, this is so confusing.
Since the penis is full of sensitive nerve endings, there tends to be atleast some degree of referred pain or discomfort with guys that have problems within the perineum. In other words, someone with a prostate issue might have referred pain or discomfort in their penis, especially at the tip (most nerve endings)... but the problem itself is not within the penis at all. The pain simply transfers, or communicates to adjacent tissues and/or structures.
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Pain after ejaculating was literally the first thing that started bothering me months ago, long before hard flaccid, before prostatitis, before epididymitis. When I would ejaculate I would just have to go sit on the toilet for a good 20 minutes to let the burning pee in the urethra drain out. That's just a classic general prostatitis symptom, not necessarily muscle related. Could be from an infection in the prostate, or from constriction of the urethra or the bladder neck. Alpha blockers seem to help with the painful post ejaculation stuff.
Bingo. Every pain I've ever felt in my penis has been referred from the prostate area. Ever get a prostate exam? When they push on it it sends a shot of pain straight up the middle of your penis. Anyone having random stabs of pain in the penis is more than likely having prostate area pain. When hard flaccid first hit my penis was KILLING me. Hurt all night. Then I got on alpha blockers and the penis pain magically went away. Then I stopped taking them and all the same exact pain came right back. On one hand I'm quite glad to see that it's not my penis that is actually hurting at all. On the other, it still hurts.
And for those saying that they feel some kind of relief of hard flaccid after ejaculating, that might make sense too. Every day you abstain you are building up more and more fluid in the prostate, especially if you are getting aroused at all on top of it. At some point you cross a line of it just getting too swollen and it needs to blow. Letting loose once every few weeks probably wouldn't be a horrible idea. Dry masturbation probably isn't the best way to do it of course. But I think normal gentle sex would be just fine. Do it at your own risk, but I don't see it being much different than having morning wood and washing it in the shower. Sex is pretty damn safe. Masturbation can get dangerous.
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Has anyone started the the PGE balancing regimen yet? Im very curious to see if that helps anyone.
And in terms of masturbation, lots of people, including myself, have stated thats how they got hard flaccid to begin with so I would definitely steer clear of it and stick to sex or if you must use at least 3 full stadium's worth of lube
And in terms of masturbation, lots of people, including myself, have stated thats how they got hard flaccid to begin with so I would definitely steer clear of it and stick to sex or if you must use at least 3 full stadium's worth of lube
I can tell you i've had sex 3 times since this all happened, and the hard flaccid was temporarily worse afterwords for an hour or so, but then by the next day was completely back to normal hard flaccid, or sometimes I felt as if it was even better. But, if this condition is CAUSED by the pelvic floor, then I would say that any type of ejaculation would be negative, because ejaculation involves the violent thrusting of the pelvic floor muscles. But I have absolutely noticed that it gets much worse after masturbation than after sex. So if you've gotta do one, have sex.
Obitoo, I was thinking recently, there is a possibility that I did not injure my penis from masturbation, but something that happened during masturbation. As I've explained before, Since I can remember i've had a deflated glans and CS. The only way to get the glans to inflate in my erection was to clench the pelvic muscles, and then the glans would subsequently fill up until I let go. It became a habit of me doing this in all of my erections, masturbation, anything. So it is a very good possibility that I tired them out one day, and It wasn't even a case of masturbating to hard, rather the pelvic muscles just gave out from being tired from being squeezed constantly.
Hopefully if I cant cure Hard flaccid I can cure the soft glans, although it seems for many it comes hand in hand. Does anyone know of any way people have been cured of having a glans and CS that doesnt expand almost at all during an erection? To me that sounds venous leak-ish. Very occasionally I can get it to expand, but that is when im with a woman, and even with a woman its still rare.
I don't know about the soft glans thing man. If the tissues and vessels of your penis are in working order, which should be easy to determine with tests, then I believe it would have to be at least partially a mental thing. The erection process is so extremely complex and involves so many systems working together. The glans swells to make penetration easier. I think a lot of it has to do with just how aroused you allow yourself to get. Looking at porn for 30 seconds, then masturbating it to an erection and ejaculating might interfere with the natural process or something, or not even give it a chance to get to that point.
I have squeezed and pushed the blood into my glans my entire life, everyone does. Those spams are natural during sexual activity.
Here is a nice long discussion amongst a number of doctors and surgeons discussing the soft glans thing. As you'll see, they are completely all over the place as to what it is. Some claim surgery fixes it, some say it's Peyronies, some say it's a venous leak, some say it's psychosomatic. They never come to any real agreement or answer.
I think natural sexual intercourse where you let the arousal process build up a bit before staring at the status of your penis head would probably make a big difference. You say it happens sometimes when you are with a woman. That right there tells you that the body parts that are required for it to happen are indeed working. Body parts don't just spontaneously turn themselves on and off. If it works at all, then it's working. Now you need to figure out what's going on during the times it is working and the times it isn't.
I am approaching hard flaccid the same way. Taking detailed notes and paying close attention to what I'm doing when it's good and when it's bad. I'd guess that the times when you don't notice soft glans are the times when you are most relaxed.
Well what makes me think its not psychosomatic is I've had it before I knew it was a problem. Ive always thought of my penis when I was little as "triangle dick", because the head never filled up. I remember looking at those poland spring water bottles when I was littler and thinking about how it resembled my penis because the "shaft" of the bottle was fat, whereas the cap was tiny. This was all before I had any inkling that this was a problem. Im talkin 3rd, 4th grade. So in those situations I had no anxiety about it because I didn't know it was an issue. And I think that in penises in perfect working order, it takes little arousal to get blood to push to the glans, wheras mine, it takes an extreme amount of arousal to get blood to the glans. I think there needs to be more blood entering than leaving the head, and the only time that happens is when im in a state of EXTREME arousal. If I push down on my dorsal vein, I can literally see the glans pump at the pace of my heartbeats with blood. It stays that way, and AS SOON as I let go, its like a balloon deflating, and the entire thing goes back to almost flaccid size in a second. So I dont believe that this means that the parts are indeed working, rather that they only work under very specific unusual situations. Who knows. This hard flaccid sure isnt helping. I've got everything going against me right now, Im not well hung, Ive got a broken penis, soft glans, and premature ejaculation. Gotta love life. Keep on truckin though.
Is anyone here from los angeles? I.can't find any pelvic floor therapists. For those of you seeing one has it helped? Do u tell them straight up.about your hard flaccid problem?
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Obitoo, you dropped your GP? What about the follow up with a higher frequency standing Ultrasound, or an upright MRI? Seems like that would really help nail it down.
There are tons of them. Just google for "pelvic floor physical therapy los angeles" and you'll find hundreds to choose from. And yes, it's definitely helping me.
www.GoodmanPhysicalTherapy.com
http://www.uclahealth.org/body.cfm?xyzpdqabc=0&id=502&action=detail&ref=115&issueref=41
http://playapt.com/contactus
http://www.westwoodpt.com/tag/pelvic-floor-muscle-training/
Yeah my GP never did anything besides pump me full of drugs anyway. Any testing I've had has been ordered through specialists. My GP was a prescription writer and is completely useless to me at this point.
All of my existing referrals and tests are still valid and covered though. I have the injection/erection ultrasound coming up in a few weeks. In the meantime I am seeing my new GP who is an Osteopath. I have a feeling that is a very good move and I'll get way farther with her than anyone else.
It's pretty obvious this condition has underlying causes and body systems associated with it. It's not as simple as "I broke my penis". There is more at play in other parts of the body, and probably the brain. A internist is great for when you've got a sore throat. And specialists can only help you with ONE thing, they won't even venture outside that area. If this is presenting itself in my penis, but is being caused elsewhere then the only doctor who can help me is a doctor of the entire body. That's why I went with the Osteo. Plus they just tend to not be in the pocket of drug companies, not quadruple booked with two hour wait times and tend to be open to thinking outside the box way more than most.
Didnt they say all they needed was a higher frequency ultrasound? Why don't they have you doing that? I've heard of people doing the erection tests and everything comes back normal. Not to say you might not come up with something, but I would think they'd stick to the one thing that actually showed results.
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