Finding a doctor that is actually interested in helping?

Orome

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You know your issue may be dopaminergic in origin, you said that PowerFULL helped somewhat, are you still taking it?

Yes, I did see a very positive effect from powerful when I first took it, but it seemed to have a diminished return when I took it on a regular basis. I don't know if it's just developing a tolerance or what. In fact, the night before I had the 2nd test I took PowerFULL before bed (3 capsules and I hadn't used it in a while) and I woke up in the middle of the night with a full erection which doesn't happen often. It didn't last long, but still the erection I got that night was better than what I was able to get with the injection.

I have talked with other guys that know more about injections and they all seem to say that is a relatively small amount.
 

Orome

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With regards to the dopaminergic suggestion. I have actually become somewhat ahnidonic. I don't feel orgasms, and it's not only sexual anhidonia, less pleasure from pleasurable activities in general. Back when I used to drink I got to the point were I could not get any sort of euphoric feeling out of alcohol at all, I could still get tipsy, but the pleasurable sensation was gone.
 

closed224

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With regards to the dopaminergic suggestion. I have actually become somewhat ahnidonic. I don't feel orgasms, and it's not only sexual anhidonia, less pleasure from pleasurable activities in general. Back when I used to drink I got to the point were I could not get any sort of euphoric feeling out of alcohol at all, I could still get tipsy, but the pleasurable sensation was gone.

I am wondering when you will be adding wieght to the mental health side of things. You did say you would search this field of medicine. What do you hav to lose>
 

Orome

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I am wondering when you will be adding wieght to the mental health side of things. You did say you would search this field of medicine. What do you hav to lose>

I'm not exactly sure where to turn to for that. And just telling me "it's all in your head" doesn't really help any. The non-responce to the injections seem to suggest otherwise as well.

A psychologist or andrologist? I saw an endocrinologist, he ruled out hormonal issues, but couldn't really comment on dopamine or brain chemistry issues as that's not his territory. It's a hit and miss sometimes with urologists that really specialize in erectile health, I did a search for psychologists that deal with 'sex therapy' but the only ones I've found are centered around family and relationship counseling not really erectile dysfunction.
 

CUSP82

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Yes, I did see a very positive effect from powerful when I first took it, but it seemed to have a diminished return when I took it on a regular basis. I don't know if it's just developing a tolerance or what. In fact, the night before I had the 2nd test I took PowerFULL before bed (3 capsules and I hadn't used it in a while) and I woke up in the middle of the night with a full erection which doesn't happen often. It didn't last long, but still the erection I got that night was better than what I was able to get with the injection.

I have talked with other guys that know more about injections and they all seem to say that is a relatively small amount.

I woke up, when my brain was sleeping and not thinking, and I had a hard erection. Hmmmmmmmm!
 

closed224

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Orome, this is back to the question of whether you will give weight to the mental, emotional health doctor. Please go see a psychiatrist. That doctor can deal with the things Coragon was speaking to also. It is time to see a mental doctor. Your penis is working when you are not thinking about it, viola. Go get help with the thinking part.
 

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I wonder how this turned out?
 

Orome

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Orome, this is back to the question of whether you will give weight to the mental, emotional health doctor. Please go see a psychiatrist. That doctor can deal with the things Coragon was speaking to also. It is time to see a mental doctor. Your penis is working when you are not thinking about it, viola. Go get help with the thinking part.

Seeing a psychiatrist that that will actually look at brain chemistry and not just tell me it's all in my head would be nice. I've looked in my area, but most of the psychologists that cover sexual topics are focused on family and relationship counseling.

After failing the test, the radiologist told me I could have venous leak or could not, but couldn't confirm it. I'm still hoping and thinking I don't, but that doesn't rule out physical causes.

Here is a good writeup on diagnosing erectile dysfunction.
Erectile Dysfunction | Male Urologic Health | Department of Urology at Miller School of Medicine
Notice how at the end it says: "*Psychogenic* Before labeling a case in such a manner, a thorough investigation is necessary to prove that no organic or bodily cause exists. Only then can treatments proceed."

Also: "Andrological research in the past years has advanced tremendously and has established conclusively that in 80% to 90% of the cases of chronic impotence, the cause is not in the mind but in the body."

But if a young person has persistent erectile dysfunction (and I'm not just talking unable to preform once or twice, but for a period lasting more than 6 months) everyone here and even some doctors automatically jump to the conclusion that it is psychogenic without ruling out or even bothering with evaluating other possible causes.
 

closed224

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And you are opposed to a psychiatrist, why? The physical is at least not over whelmingly proven, and yet you won't even consider a psychiatrist. Why not one that deals with anxiety as opposed to sexual? Impotence is not the same as Erectile Dysfunction. There is a large chasm between these two items. Some overlap also, but not the same issue at all. Has your sperm been checked for impotence?
 

Orome

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The article was specifically talking about erectile dysfunction, but you are right they used the word impotence in the statistic.

I'm looking for a psychologist or neuro psychologist. Just like urologists, not all are the same. I do have a loss of pleasure, anhedonia, so maybe that's something they can help with too. Maybe it's related.
One of the urologists did suggest possibly doing a test of the adrenal glands, but when I followed up he told me that's something I'd have to see a endocrinologist about.
 

closed224

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An endocrinologist would be helpful for all of the possible medical experts. Have you got an appointment? That might hold a lot of answers.

Sorry I went and reviewed the beginning of this thread. There is nothing from the endocrinologist, correct?
 
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Orome

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An endocrinologist would be helpful for all of the possible medical experts. Have you got an appointment? That might hold a lot of answers.

Sorry I went and reviewed the beginning of this thread. There is nothing from the endocrinologist, correct?

Yes, I saw an endocrinologist in December. He did a blood test and hormonal panel but didn't see anything that would be causing my symptoms and prescribed me Cialis.

So... one doctor suggested I try using a tension band. I bought the largest most elastic one I could find online... LOL not nearly big enough. I mean technically it can be stretched to my circumference, but I have to really work to stretch it that far. No way I'm putting that on my cock, reminds me of an elastrator.
 
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corageon

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The article was specifically talking about erectile dysfunction, but you are right they used the word impotence in the statistic.

I'm looking for a psychologist or neuro psychologist. Just like urologists, not all are the same. I do have a loss of pleasure, anhedonia, so maybe that's something they can help with too. Maybe it's related.
One of the urologists did suggest possibly doing a test of the adrenal glands, but when I followed up he told me that's something I'd have to see a endocrinologist about.

Just to let you know..it's EXTREMELY common to have what's called a "circadian psychogenic upset"..it's something that originates from a region in your hypothalamus called Suprachiasmatic Nucleus (SCN) - it's common amongst teenagers who have sleep issues and their night time and day time is flipped..it's also common in men , namely younger , with an anxiety disorder and especially predominant in individuals with ADHD and Obsessive-Compulsive-Disorder...essentially it means that the ONLY time your brain is truly relaxed is when you are sleeping, and during the day you are in a constant anxiogenic, "in your head" type personna...where 90% of what you do is introverted-anxiogenic self-collection.

...it's so common that it contributes to at least 76% of youthful psychogenic E.D.

The best way to fix it is by getting full nights of sleep, melatonin if necessary to stabilize circadian rhythms..and if necessary, therapy/mental strategies may be added to augment your overall routine.

Since you had obtained an erection during sleeping, it's highly suggestive of the circadian upset and you should certainly make it a point to get 8-9 hours of sleep a night!

With that being said, try PowerFULL at 5 days on, and two days off (cycling it) but PLEASE read the above and consider what these other guys are saying... I see this issue all too often...and very often it's a matter of "getting OUT OF YOUR HEAD" and taking at least a few hours to change your acclimization to your routine and possibly go out for a walk a few times a day, at least do something like that!

The Human Suprachiasmatic Nucleus
{2} The Human Suprachiasmatic Nucleus
http://www.ncbi.nlm.nih.gov/pubmed/18032104
http://www.ncbi.nlm.nih.gov/pubmed/19667692
 
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Orome

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That's an interesting point corageon, I readily admit I am high strung and it's hard for me to relax.

My problem was never really getting erections, it's maintaining them and having them be hard enough. Oftentimes when I'm aroused I'll get a weak erection where it is engorged but not really hard, not hard enough for penetration. I can get harder if I press down at the base (constricting the dorsal vein) or sometimes right before climax.

There seems to be some misunderstanding here. Sometimes people can still get erections with venous leak while on oral medications, just weaker softer ones. There are varying degrees, some that make erections completely impossible, some that just make them much harder to achieve and maintain. I was just talking with people over on FrankTalk. A lot of them have diagnosed venous leak.
 

Orome

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Is the cycling to prevent a tolerance being built up? That's a good idea.
 

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There seems to be some misunderstanding here. Sometimes people can still get erections with venous leak while on oral medications, just weaker softer ones. There are varying degrees, some that make erections completely impossible, some that just make them much harder to achieve and maintain. I was just talking with people over on FrankTalk. A lot of them have diagnosed venous leak.

And some people without VL struggle as much with erections. You are on a road of endless speculations. I am sure you have already decided to take the doppler for the 3rd time and until then you can't put your mind on ease no matter what.

But perhaps rather than speculating what it could be, you could actually try to start accepting the fact that ED is an issue you may need to deal with the rest of your life. If you are like many young guys here that think their life is ruined it will only make it worse over time. Once you have accepted the issue you can actually start dealing with it. It may disappear overtime or new treatment becomes available but until then it's a part of your life.
 

Orome

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And some people without VL struggle as much with erections. You are on a road of endless speculations. I am sure you have already decided to take the doppler for the 3rd time and until then you can't put your mind on ease no matter what.

But perhaps rather than speculating what it could be, you could actually try to start accepting the fact that ED is an issue you may need to deal with the rest of your life. If you are like many young guys here that think their life is ruined it will only make it worse over time. Once you have accepted the issue you can actually start dealing with it. It may disappear overtime or new treatment becomes available but until then it's a part of your life.

I had a 3rd Doppler scheduled, but the doctor canceled the appointment. He won't let me do the test because he thinks there's no point. I don't have a doctor that is wiling to do one on me.

The thing is, a little over a year ago I did not have ed, I remember waking up in the middle of the night with a rock hard erections that would not go away. I can trace it back to going overboard with pumping and improper jelqing.

Do you have persistent ED?
 
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Orome

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On a separate note, does anyone know of bands for large girth. I looked online and could not find any that would accommodate my size. Or maybe one that only puts pressure on the top of the base instead of constricting everything (that actually seems to help a little if I do it myself) that's where the deep dorsal vein is located.
 

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Is the cycling to prevent a tolerance being built up? That's a good idea.
Yes. I suggested that before on multiple occasions. You should always cycle sups that act on hormonal or neuroendocrine pathways. Trust me, it will help..you'd be amazed what stuff seems "RE-ACTIVATED" and starts working again. Don't lose hope.
 

CUSP82

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After 2 dopplers what do you think a third will do? You are convinced you have an injury; the doc is not. Tests seem to be on he docs side.You don't want to believe it. Sadly with that mindset nothing will ever change and sadly it's your choice. Funny if one test showed you had an injury that test you would believe; the 2 that says you're fine you won't believe. I can't help here; good luck.