Finding a doctor that is actually interested in helping?

CUSP82

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This guy is convinced that his problem is physical and by implying to get more tests,the test wasn't done right etc I find that it is giving him no help. From what I can tell you have some knowledge but not really enough to say some of what you say but you are free to say it. I just don't think that you have helped this guy and may have done more harm than good.
 

zezeze

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This guy is convinced that his problem is physical and by implying to get more tests,the test wasn't done right etc I find that it is giving him no help. From what I can tell you have some knowledge but not really enough to say some of what you say but you are free to say it. I just don't think that you have helped this guy and may have done more harm than good.

It wasn't about not doing the test right, it was not performed at all! I know this, he knows this, anyone who has gone through doppler knows this. Doppler is incredibly precise and useful to rule out 2 common causes of ED, and I know how desperate this guy is to get it done properly. I have been in his shoes.

But I really don't care to keep going on about this any longer. In fact if this guy Orome feels the same way as you that I have done him more harm and been completely useless then I agree never to post anything on this forum again. I am not here trying to make people like you to realize anything.
 

m3232

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Orome.
VL is caused by disease not trauma.
You don't have it. I dont give a fuck if I have no proof.
You pretty much know everything there is to know about dicks and how they can mechanically malfunction.
If you injure a vein in your penis it repairs itself. Unless it is massive trauma that turns your dick purple.
Its totally different to veinous leak.
If you have veinoua leak it wont be specifically in your penis, you would have very very low blood pressure and you wouldn't just loose an erection when yoy stood up you would often pass out.
Ffs.
 

m3232

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Mate, veinous leak, specifically and exclusive to the penis is a mythological pseudo medical hypothesis that would explain the symptoms of most ed cases.
 

Orome

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Orome.
VL is caused by disease not trauma.
You don't have it. I dont give a fuck if I have no proof.
You pretty much know everything there is to know about dicks and how they can mechanically malfunction.
If you injure a vein in your penis it repairs itself. Unless it is massive trauma that turns your dick purple.
Its totally different to veinous leak.
If you have veinoua leak it wont be specifically in your penis, you would have very very low blood pressure and you wouldn't just loose an erection when yoy stood up you would often pass out.
Ffs.


It's true VL is most often caused by underlying disease. It can, however, be caused by trauma. It is usually more serious trauma, though. The thing is nobody really knows what goes on with PE, not us, not urologists (I've asked). What happens if you expand (through pumping) the outer tissue (tuica and bucks facia) without really enlarging the corporal bodies that expand against it to create a firm erection? I don't know. I don't think anybody does because It hasn't been researched.

The last statement isn't really true, you wouldn't necessarily pass out.

I appreciate the input, but some of you guys seem more sure of my diagnosis than the doctors that requested the tests.
It's true I had two tests, but neither test was completed as I was not able to maintain an erection during the test. That's the only way to get a conclusive result. Have you guys had injections? Everyone I've talked to that doesn't have organic causes have told me the injection gave them a long lasting, very hard, (involuntary) erections.

Neither doctor could tell me I don't have organic ED. The radiologist that's done a lot of these studies told me it's possible I have VL.

Maybe there is an aversion to diagonsing someone my age as there is no cure and a diagnosis would undoubtedly make the psychological burden that much worse.


I have been on a daily dose of Cialis for the past few weeks. It actually has been helping, still not 100% but I can feel the difference. I haven't been on this forum every day because to be quite honest I'm trying not to think about it too much and that involves avoiding the forum for a time. Maybe I'm better off not knowing if I do have organic ED.
 

m3232

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When you are a young kid in school and someone breaks their arm, its weird but the plaster cast is actually a kind of status symbol. sh*t, breaking your arm looks cool. Deep down every kid wants to break their arm, every kid wants the plaster cast.
You want the doppler, you want the ddrama. You reel off such pseudo medical bullshit that you googled to fit around your circumstances that you believe you are different to everyone else who gets this post trauma cock lock. Youre not.
Its a simple fix, you have been told time and time again what to do.
Do it or you will be joining voodoo and his brothers in the ten year club.
 

Orome

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Mate, veinous leak, specifically and exclusive to the penis is a mythological pseudo medical hypothesis that would explain the symptoms of most ed cases.

When you are a young kid in school and someone breaks their arm, its weird but the plaster cast is actually a kind of status symbol. sh*t, breaking your arm looks cool. Deep down every kid wants to break their arm, every kid wants the plaster cast.
You want the doppler, you want the ddrama. You reel off such pseudo medical bullshit that you googled to fit around your circumstances that you believe you are different to everyone else who gets this post trauma cock lock. Youre not.
Its a simple fix, you have been told time and time again what to do.
Do it or you will be joining voodoo and his brothers in the ten year club.

What is this? Explain how it's mythological pseudo medical bullshit? I'm not even sure why you are attacking me. There are thousands of posts in this forum about conditions that are not even recognized by the medical community (like hard flaccid) and you are telling me one that a pretty much universally accepted condition is mythological? Are you saying that venous leak does not exist? That people have not had trauma that has caused permanent ED?
 

m3232

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No. I am saying that veinous leak specific to the penis caused by trauma is massively negligible In the mmedical field for a reason-Veinous leak is caused by disease or deficiency Not trauma. If you bust a vein thats not veinous leak. Believe me I did it my self to the superficial dorsal vein. Diagnosed by a doctor not by myself. After it healed my dick still didnt work. You say there are thousands of posts about conditions not recognised by the medical community.
These are not conditions but symptoms.
I am not attacking you.
As long as you look for problems you will find them.
 

m3232

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In fact yes, I am saying that veinous leak, SPECIFIC TO THE PENIS ie, not an extension of a bodily condition or disease is mythological SSpeculation by people who have symptoms that feel like they are veinous leak.
Trust me i was one.
I doubted my doctor but he was right all along.
Think about the logic of what you're saying man.
Veins repair themselves unless the trauma and haematoma is massive.
How is your blood pressure?
Fine I expect as you haven't mentioned it.
Nobody is attacking anyone. I feel your despair.
I thought my own dick would never work again too.
 

m3232

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Are you aware of any pelvic floor tension? Lower Back alignment?
Most doctors will not give you some of the great info thats available on this forum.
My doctor actually said to me while I was deep in hard flaccid trauma that she was 'not concerned'
I was blown away by that. She doesn't even have a dick.
While she wasn't concerned she also wasn't wrong. When I found the root of my problems (which felt exactly like what i IMAGINED veinous leak specific to the penis would feel like) was pelvic floor issues I felt like booking another appointment just to call her a cunt but I didn't.
I addressed it objectively, with the thought that it might take years but I had to stop with the stress and the drama.
Every man is rooting for you. Believe your doctor, he may be a cunt but believe him.
Believe in recovery and it will come fast.
 

Orome

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In fact yes, I am saying that veinous leak, SPECIFIC TO THE PENIS ie, not an extension of a bodily condition or disease is mythological SSpeculation by people who have symptoms that feel like they are veinous leak.
Trust me i was one.
I doubted my doctor but he was right all along.
Think about the logic of what you're saying man.
Veins repair themselves unless the trauma and haematoma is massive.
How is your blood pressure?
Fine I expect as you haven't mentioned it.
Nobody is attacking anyone. I feel your despair.
I thought my own dick would never work again too.

Venous leak (especially in younger people under 40) doesn't seem to be widely researched, and the underlying causes aren't always cut and dry. Most doctors don't even believe that the penis can be enlarged. I did see a lot of gains, especially in girth. Until one day I way overdid it with pumping and erect jelqing.

You are right about hard flaccid not being a diagnosis, but rather a collection of symptoms. Not saying they don't have merit, but it's never really been investigated by the medical community.

The thing is, even several of the urolgists (one that ordered the ultrasound) told me it's possible I have VL, but he could neither confirm or deny it because I failed to maintain an erection after getting the caverject injection. Have you ever had a caverject injection? From what I understand it's unusual to not get an erection during it, especially twice in a row. Another urologist (one that actually does penile implant surgeries) told me he didn't want to test for VL because he isn't going to do tests for medical problems he isn't going to treat and he's not doing an implant in someone my age.

How long was yours going on? It has been 1 year for me, that's a long time.
My blood pressure is good, just had it checked recently 116 / 70 something.
Pelvic floor is something that could contribute, I'm not really sure how to tell when things are off balance or not.

A appreciate the input, but the thing is not everyone's situation is the same. They are all unique. The doctor told you, it would all be fine and it turned out to be. I see a lot of people freak out and think they have permanent ed from various causes, but something that's long term and resistant to drugs that work for most people warrants more investigation. Even while on Cialis, if i get an erection and stand up or stop stimulation, I normally lose the erection in a matter of seconds. Without it, it's even worse, or I don't wind up being that hard even while "fully" erect.

I hope the same, but I didn't necessarily get the same reassurance. Most said, it's possible then suggested Viagra / Cialis and a constriction band.

I do have another anomaly that occurred at the same time, I didn't bother mentioning it before because it only happens when I have a full erection which isn't often and usually requires Viagra etc. I had hoped the ultrasound would be able to investigate it, but the test could not be completed. When conditions are perfect and I'm on Viagra and I get a full erection, I can see a bulge (collection of small blood vessels) just below the glands. It bulges out like the size of a pea, and sometimes I actually get a sharp pain there. If I put my finger on it I can feel a strong pulse. No idea what it is or if it's related, it's odd because veins don't usually have strong pulses like that, only arteries. It only occurs if I can get a full erection and use constriction at the base.
 
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m3232

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Good luck man.
 

White_Hawk

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Wow Orome, I have the same symptoms as you. How come some doctors do perform implant surgeries on young men, though?
 

zezeze

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Wow Orome, I have the same symptoms as you. How come some doctors do perform implant surgeries on young men, though?

Because it's very costly and permanent non reversible procedure with risks. If oral medication / injections work then it is not recommended. It will also make your dick shorter as well.
 

m3232

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Orome, whatever your problem is if its been going on for a year I think some very mild pe,, not for gains but for health would be useful. It certainly can't make it any worse
If you had made gains from pe and then injured you would go back to the way you were before you even started pe, not the way you were before injury.
I can't wait for this to click with u.
 

mikecares

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Ask to see an andrologist. A neurologist as well

Try pelvic physiotherapy with someone who specializes in the male pelvic area. I've heard physio helps with venous leaks.
 

Orome

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Orome, whatever your problem is if its been going on for a year I think some very mild pe,, not for gains but for health would be useful. It certainly can't make it any worse
If you had made gains from pe and then injured you would go back to the way you were before you even started pe, not the way you were before injury.
I can't wait for this to click with u.

That did not happen, aside from kegels I have not done any PE and I have not lost any of my size gains. EQ, yes, but size when I actually do get 100% erection however short that may be is the same.
 

m3232

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When I got injured I swore I would never try to stretch my dick again but I found it really helped in recovery.
Very gentle stretching and massage and some light jelqing with half kegals.
It took a while for me but most important was getting that frame of mind back. Where as my pe mantra (I didn't really have one but..) was my dick will get bigger it became, my dick will get healthy.
Recapture that frame of mind you had when pe was good for you.
That confidence.
You sound like you are doing better.
You took yourself from a to b before with pe, why not give it another try, what have got to learn.
I totally understand if you tell me to go fuck myself but im only saying as it really helped me to just block out all the advice and just try to gently use pe to get me out of the same mess it got me into.
All the head and pelvic floor and tre and re im sure sound like theyre working
Two weeks of very mild mentally and physically positive worked for me.
Way gentle half kegal relaxed stretches and deep breathing channeling the energy and blood slow jelqing.
Give it a shot man.
Three weeks. Like there old days in body and mind.
Peace man
 

m3232

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I meant what have you got to lose not learn :)