The Official Hard Flaccid Recovery Thread

[waff]

I'm almost 100% sure my hard flaccid was caused by a single session of me stretching too hard, and holding it too long. Without even doing heli shakes inbetween..

 

[obitoo]

So the plot thickens with this mystery visitor who claims to have cured himself to 100%. He is refusing to submit content with a real email address so I can't communicate to him at all besides him reading this thread and then writing in again. It's seems a bit silly, but I can certainly respect it. Just please know that I get several emails a day from people all over the world via the website and we have plenty of private email exchanges etc. Also, several people contribute their thoughts, comments, stories, treatment suggestions etc to the site and I've never published anyone's private info. I just don't have any interest in that at all.

But again, I can respect people's hesitancy to share anything on the internet. So then Mr. Invisible, to keep with the current format of the site, here's what you can do.. Go ahead and please submit your story and all the information you want to discuss with everyone via the Submit link on the site, just like everyone else has been doing. It's totally anonymous. You can do it with whatever fake email address you wish. The difference now is that I have enabled comments on the site. Please go ahead and submit this just like you would start a forum topic, because that's a lot like how the comment system functions anyway. I hope it spawns some good discussion. I will be waiting eagerly for your post.

An official forum is in the works, but I am particular about providing the best experience possible so I will be taking some time to get the technology in place. Should be ready fairly soon. Keep an eye on the site over the coming week(s) for that. Till then, please comment away!

 

[john1960]

Just got to reach out for a second here guys.

This whole situation is weighing pretty heavily on me right now. I mean with partial ed, numb penis, all these vericose veins, loss of size, the bend, I keep trying to stay positive but the numbness seems to increase and the HF only marginally gets better every now and then. I dont recognize my own penis any more really. Lets put it this way, if I was a girl I would definitely not be inclined to suck on it. Just looks so unhealthy, kinda discolored, veiny, and dispraportionate. Just really suckin the life out of me and making me pretty depressed. I have a number of other somewhat major medical issues going on right now that are taking a lot of my energy and now this is just sucking me dry. All seems like a bad nightmare. Sometimes I dont know how much a I can handle anymore. Uhg.

 

[Mr.Friend]

Just got to reach out for a second here guys.

This whole situation is weighing pretty heavily on me right now. I mean with partial ed, numb penis, all these vericose veins, loss of size, the bend, I keep trying to stay positive but the numbness seems to increase and the HF only marginally gets better every now and then. I dont recognize my own penis any more really. Lets put it this way, if I was a girl I would definitely not be inclined to suck on it. Just looks so unhealthy, kinda discolored, veiny, and dispraportionate. Just really suckin the life out of me and making me pretty depressed. I have a number of other somewhat major medical issues going on right now that are taking a lot of my energy and now this is just sucking me dry. All seems like a bad nightmare. Sometimes I dont know how much a I can handle anymore. Uhg.

hang in there my friend. have you posted your story on the website? also, keepinfaith is about to get abuncha stuff done and supposedly is in contact with an amazing fucking doctor right now, who knows some of the best in the field and even had a phone consultation with them aboout the hard flaccid problem. so they have invested interest. if you need, pm me your cell number, i will always talk to you man. i know this is a nightmare man. i know it is

 

[obitoo]

Hang in there guys. I can't emphasize enough how much stress can multiply our symptoms. Stress reduction and 100% hands off abstinence got me 80% of the way there.

 

[scissorCock]

Hang in there guys. I can't emphasize enough how much stress can multiply our symptoms. Stress reduction and 100% hands off abstinence got me 80% of the way there.

I left my penis alone for almost 10 days, with no kegels at all. I remained taking the 5Gs and L-Arginine about 1000mgs 2-3x a day. I went back to smoking a couple of cigarettes a day. I can say my HF problems are currently over. I am going to be weary of having too much sex and I will never masterbate again.

I wish you guys the best of luck. I do recommend 5G's (5/2 cycle) and L-Arginine (When you plan on having sex). In addition, living stress free also plays an important role. I was lucky to have a good woman in my corner during my short ordeal.

 

[Mr.Friend]

I left my penis alone for almost 10 days, with no kegels at all. I remained taking the 5Gs and L-Arginine about 1000mgs 2-3x a day. I went back to smoking a couple of cigarettes a day. I can say my HF problems are currently over. I am going to be weary of having too much sex and I will never masterbate again.

I wish you guys the best of luck. I do recommend 5G's (5/2 cycle) and L-Arginine (When you plan on having sex). In addition, living stress free also plays an important role. I was lucky to have a good woman in my corner during my short ordeal.

you sir, are extremely lucky, but please stay with us. we cud use some extra speculation and moral support. And posibly testimonies once some doctors really recognize this. We'll need everyone we can get to add their story, even if you escaped this, you have a past history of it

 

[HFproblem]

I am almost certain the Hard Flaccid is causing premature ejaculation. If its effecting the pelvic floor, and they recommend strengthening the pelvic muscles to eliminate premature ejaculation, I think its logical to assume weak pelvic muscles would cause premature ejaculation. I literally came in like 15 seconds today. Pathetic. And afterwords I felt as if there was a tennis ball shoved up my ass.

 

[obitoo]

Awesome news man! So happy for you. Would you be so kind as to put together your story and routine and submit to the website? I think it could be really helpful for a lot f people.

Also, I find it interesting you mention smoking. I smoked 3 all natural pure tobacco cigs a day for several years. Very soon before getting HF I quit, thinking it would help with my prostate pains when I had no idea what was wrong with my pelvis. Anyway I've since read that quitting smoking can cause testosterone to nosedive (which mine has), and cause other stress hormone freakouts. Just curious what your smoking status was before, during and after HF. It may not be relevant at all but I'd like to hear your input.

Congrats again! Any details I can get on the site would be appreciated by many I'm sure.

Stay healthy.

 

[john1960]

Thanks for the support. Just had to vent for a sec.

Have already posted my story on the site.

And scissor, really happy for you man. HF can be tricky though as Ive had periods where things were hanging pretty normally for days on end for it to come back rather quickly. So pop in every now and then and keep us updated. Hoping it stays for you.

 

[KeepingFaith]

Very strange thatsome of you are experiencing the non-engorged glans during erection. Mine has becomes the exact opposite. During any period where my penis is erect my prOblem is actually that the gland becomes OVER engorged. To explain further, the rim of the glans right where the gland meets the shaft is very pronounced and very firm. I never thought much of it until you bring it up but its definitely not something that I had before. It looks strange actually, even at 50% erection it is fully engorged, probably even a little over engorged.

Unfortunately after a "wet dream" my hf has really taken a turn for the worse, but I'm practicing abstinence and am on day 12 so far. Beginning to notice a slight decrease in firmness so I really think abstinence is going to be a key role in a solution.

I know for a fact that the doctor I'm seeing who has acknowledged this problem has in fact viewed the hardflaccid.org site and has passed it along to get ideas brewing with his colleagues. I am going for my standing Doppler and MRI very soon, within the next few days. He I insisting on a test involving a penile dye injection test to monitor bloodflow. What are everyones thoughts on this? I'm wary of any kind of injection, but will gladly do so for the sake of our group if we all think it would be beneficial. Please let me know.

 

[john1960]

I think the penile dye is a great idea. Will really give a clear picture of what is going on.

Anything with the word "injection" or "dye" can sound a little discomforting but it will be all good. I had an injection for one of my ultrasounds (erectile function) and everything turned out fine. But I can definitely understand being wary of it though.

 

[Booner]

I left my penis alone for almost 10 days, with no kegels at all. I remained taking the 5Gs and L-Arginine about 1000mgs 2-3x a day. I went back to smoking a couple of cigarettes a day. I can say my HF problems are currently over. I am going to be weary of having too much sex and I will never masterbate again.

I wish you guys the best of luck. I do recommend 5G's (5/2 cycle) and L-Arginine (When you plan on having sex). In addition, living stress free also plays an important role. I was lucky to have a good woman in my corner during my short ordeal.

Thanks for sharing. Happy for you man. I wonder if your pronounced vein/s also faded when you recovered?

 

[Booner]

Just got to reach out for a second here guys.

This whole situation is weighing pretty heavily on me right now. I mean with partial ed, numb penis, all these vericose veins, loss of size, the bend, I keep trying to stay positive but the numbness seems to increase and the HF only marginally gets better every now and then. I dont recognize my own penis any more really. Lets put it this way, if I was a girl I would definitely not be inclined to suck on it. Just looks so unhealthy, kinda discolored, veiny, and dispraportionate. Just really suckin the life out of me and making me pretty depressed. I have a number of other somewhat major medical issues going on right now that are taking a lot of my energy and now this is just sucking me dry. All seems like a bad nightmare. Sometimes I dont know how much a I can handle anymore. Uhg.

Don't ever lose your hope. I can assure you that you Never recover with then. Keep faith Buddy, it's Hard for everybody. Harder for some.. I'ts happened more here in à month then it has for over years!! That good news! If i was you i wouldnt even look at My penis for à couple of data. Sit down peeing, skip shower

 

[obitoo]

Very strange thatsome of you are experiencing the non-engorged glans during erection. Mine has becomes the exact opposite. During any period where my penis is erect my prOblem is actually that the gland becomes OVER engorged. To explain further, the rim of the glans right where the gland meets the shaft is very pronounced and very firm. I never thought much of it until you bring it up but its definitely not something that I had before. It looks strange actually, even at 50% erection it is fully engorged, probably even a little over engorged.

Unfortunately after a "wet dream" my hf has really taken a turn for the worse, but I'm practicing abstinence and am on day 12 so far. Beginning to notice a slight decrease in firmness so I really think abstinence is going to be a key role in a solution.

I know for a fact that the doctor I'm seeing who has acknowledged this problem has in fact viewed the hardflaccid.org site and has passed it along to get ideas brewing with his colleagues. I am going for my standing Doppler and MRI very soon, within the next few days. He I insisting on a test involving a penile dye injection test to monitor bloodflow. What are everyones thoughts on this? I'm wary of any kind of injection, but will gladly do so for the sake of our group if we all think it would be beneficial. Please let me know.

Great to hear your update. My glans has been pretty standard since HF. I am noticing that my nocturnal erections, which last dangerously long, cause it to really blow up and get uncomfortably engorged. Sexual erections seem normal for me. Last night my nocturnal erection was so hard and full of blood that it woke me up from the pain. I had to go into the bathroom and examine myself to make sure I didn't split the skin open.

I think you are right in that abstinence is key. I went 100% hands-off for the first two weeks and in that time I recovered about 80%. Had very gentle sex once and then masturbated two days in a row and my recovery seemed to grind to a halt. And the past week it's actually seemed to start getting worse again. It's in that small, heavy, rubber tube mode way too often and those times of putting my feet up on the couch and going to 100% sponge seem to be gone. The only time I'm getting that now is during pre-semi-erection.

During the past week or two since things have taken a turn for the worse I also started drinking coffee again, and started getting erections several times throughout the day. Not masturbating at all, but actively checking out porn etc to induce an erection for a few minutes. My reasoning behind that is to try and help stimulate my testosterone production, as well as to get some good blood flow to the area as I've been on my feet and in hard flaccid mode more often lately. Anyway, ejaculation leaves my urethra in so much pain afterward that I am not even considering it. I think I am also going to quit those periodic boners throughout the day, doesn't seem to be helping the HF at all. I am also going to drop coffee again and see if that helps. I have to give a sperm sample this week to the fertility people so I don't really have any choice but to masturbate at least once this week. After that I'm hands-off again.

These alpha blockers don't seem to be doing anything for HF so far. Last week it felt like my urethra was being opened with a screwdriver, in a good way, if that makes sense, but nothing since. One thing they have done is sort of relaxed or numbed some of the perineum or bulb muscles, and now when I am aroused I no longer clench when I normally would. I can actually feel my body want to do it but it just doesn't allow it to happen... then all of a sudden after five or six of these "false starts" the muscles will clench, but in a really far too powerful way and it goes from 0 to 60 in one second and just contracts everything at once really forcefully. Hurts the penis a whole hell of a lot, and also sends a crazy spasm through my whole body and legs. It's like the feeling of being paralyzed and then suddenly having 150% muscle control for one second. Like being in a wheel chair for a month, and then suddenly for one moment being able to jump 20 feet in the air, and then landing on your paralyzed legs. Very uneasy feeling.

I think the dye is a fine idea. I recently (prior to HF) had a CT scan of the entire abdomen and pelvis with contrast injection and didn't have any bad effects. I'd imagine the ultrasound version with dye is even less risky. Only thing that would potentially freak me out might be the actual needles going into my penis. I'd definitely have to look away. They probably actually inject into the artery though anyway.

At my last uro appointment the doctor mentioned giving me an ultrasound with injection dye, along with chemical-induced erection. That would be coming up in about 3 weeks or so if I get it. But I have an appt with another uro this week on Thursday and will mention it to him as well. I'm up for anything at this point. He's going to have his hands full on this one. Hard Flaccid, Infertility, low testosterone and CPPS. Not even sure where to begin.

Keep us posted!

PS: I've got some guy writing me anonymous emails who claims to have found the cause and the cure, at least for himself. Says the cause, at its root, is inflammation. He didn't go any further and I asked him to submit his findings to the site. I enabled discussion comments there so we can get a good dialog going on it but haven't heard from him since. I can only assume it's some kind of Prostaglandin E2 elevation or something similar that he's referring to, but I have no idea. He describes it as overuse (or trauma, I suppose) causing inflammation, then stress inducing some kind of hormone/chemical (I'm assuming neurotransmitter) imbalance which results in depletions which results in artery constriction. His very brief description described 3 weeks of abstinence and some kind of supplement regimin, causing the systems to "reset" themselves and retain balance.

Hopefully he'll write in again. It sounded kind of promising. The fact that he mentions artery constriction keeps me interested, because that's obviously happening here. Anyway, if you're out there dude, please go to the site and hit Submit and we can get talking about this!

 

[scissorCock]

I do have to agree with the anon emailer. You can feel the constriction. As KingPole suggested, Doans back relief (purely magnessium) and applying heat to the area did help.

My vein did not pronounce but it is not as dark as it used to be. If I have to take supplements and not over excite my sexual activity for the rest of my life, it is better than having HF. I'm not afraid of getting it again because having hope, recognizing patterns in the behavior, and taking advice will make it disappear.

For all the doubters, again I strongly suggest 5Gs, leaving your cock alone (this includes arresting your kegel routine), heat, Doans, tea, and a positive outlook you may be able to cure yourself temporarily or for good.

Take it easy, PM me if you have any questions, I need to focus on my PE issues now hopefully I can make it without any exercises.

 

[SearchForTheCure]

ScissorCock - thanks for the input. What is "5Gs" - and what is "5/2 cycle"?

 

[obitoo]

I do have to agree with the anon emailer. You can feel the constriction. As KingPole suggested, Doans back relief (purely magnessium) and applying heat to the area did help.

My vein did not pronounce but it is not as dark as it used to be. If I have to take supplements and not over excite my sexual activity for the rest of my life, it is better than having HF. I'm not afraid of getting it again because having hope, recognizing patterns in the behavior, and taking advice will make it disappear.

For all the doubters, again I strongly suggest 5Gs, leaving your cock alone (this includes arresting your kegel routine), heat, Doans, tea, and a positive outlook you may be able to cure yourself temporarily or for good.

Take it easy, PM me if you have any questions, I need to focus on my PE issues now hopefully I can make it without any exercises.

Great to hear about your recovery. Please consider submitting this info to hardflaccid.org so others can learn from it. The details of your recovery, what helped, what didn't etc would be very valuable info for a lot of people. There are many sufferers stumbling upon the site now from all over and not just from this forum. Thanks for sharing. Congrats again.

 

[john1960]

scissor could you reiterate on the f g's again ? Thanks.

 

[Booner]

One thing i've Never mentioned before is that i've been experienced pain in My blind gut. It started when i begun PE, then it has been on and off ever since. I think that can be connected to the Hard flaccid, anyone Else has experienced this?

I also wonder what 5G is, all i get fr.o.m. Google is iphone.

Has anyone tried taking anti-biotics?