What is the best treatment for peyronie's disease?

[Olive900]

I am pretty sure i have it and i have all the symptoms of it such as hourglass effect, not full erection. I read that many people lose length.


If i start treating it right now, does that mean i won't lose length and get more of those really bad side effects?


I really want to start as soon as possible. I see people mention pentox, dmso, L-Carnitine, L-Arginine. I heard vitamin E doesn't work so don't waste your time.


Is there a chance that i start now, that i won't lose length and those other problems or is it too late? I know there is no cure but i'm very worried right now because my penis erect normal size before this is 3.75-4 inches only and already have a small penis.


Can someone tell me what is the best treatment right now? I hear some people say l-carnitine takes years to work but pentox works but some people have side effects?

 

[steve123]

Dude, you dont have peyronies. Basic defintino of peyronie's is a plaque in your dick causing it to bend and become super painful.

So don't just do your own self-home treatments and mess up your dick even more. Get a urologist on board for your ED and get treated by a professional. I'm saying this as your friend.

p.s. i didnt have time to read everys ingle post of yours, but you mentioned several docs told you you dont have it either. If so, what did they say was the cause?

 

[DemOne]

Surgery + extender, extender, or waiting years for it to naturally heal. Those are the only known medical options for curing Peyronie's disease. Extenders were created for fixing Peyronie's disease, so it's not like this isn't a completely known medical condition that doctors are aware of.

Go to a different urologist!!!! You cannot self diagnose. The internet is not a doctor to cure you. If Urologists keep saying you don't have it, you don't have it.

 

[CUSP82]

Is there any reason why you do not believe a trained medical professional. You know he'd make more money in treating you for a problem so what do you think his moitvation would be to say you're fine? He doesn't like you? Are you ugly or something? Oh I know he wanted to say you're fine even though you know you're not so you can get another doc to tell you you're not fine so then you can go and sue the first one and never have to work for the rest of your life. It all makes sense now!

 

[obitoo]

Here is the only treatment that works...

Step 1: Go to an actual doctor and actually get an actual diagnosis. Done. Only problem, the diagnosis is that you don't have it.

Step 2: Hop on the internet and endlessly Google pictures of deformed penises until you find one that kind of looks like yours from the right angle.

Step 3: Have a panic attack until your hormones and immune system are in the toilet.

Step 4: Seek out the advice of random strangers online with no medical training whatsoever.

Step 5: Diagnose yourself via plain text internet forums, ignoring all who offer logical advice.

Step 6: Yay! You finally "officially" have Peyronie's. Now you can begin treatment.

Step 7: Load up on supplements and medications purchased on the internet.

Step 8: Hope for the best.


OR

Anything else.

 

[packin penor]

Here is the only treatment that works...

Step 1: Go to an actual doctor and actually get an actual diagnosis. Done. Only problem, the diagnosis is that you don't have it.

Step 2: Hop on the internet and endlessly Google pictures of deformed penises until you find one that kind of looks like yours from the right angle.

Step 3: Have a panic attack until your hormones and immune system are in the toilet.

Step 4: Seek out the advice of random strangers online with no medical training whatsoever.

Step 5: Diagnose yourself via plain text internet forums, ignoring all who offer logical advice.

Step 6: Yay! You finally "officially" have Peyronie's. Now you can begin treatment.

Step 7: Load up on supplements and medications purchased on the internet.

Step 8: Hope for the best.


OR

Anything else.

HAHAH! Sounds like someones talking from experience here

 

[obitoo]

HAHAH! Sounds like someones talking from experience here

Ha, no Peyronie's here. But I did certainly go down the same dark path as Olive, and it got me nowhere. Just trying to give this guy some logical advice. He seems to almost want Peyronie's.

 

[packin penor]

Blah, lucky you. I'm actually near the end of my long journey with Peyronie's.. fortunately I had a very mild case. I found it absolutely hilarious that you summed up just about a year of my life in 8 easy steps haha

 

[NumbGlans]

I would try tamoxifen.

The Treatment of Peyronie's Disease with Tamoxifen - RALPH - 2008 - British Journal of Urology - Wiley Online Library

 

[palladin]

OP, get an MRI. Evidently that's the only way you will accept you don't have Peyronies ;-)

 

[Olive900]

Hey Guys.

I want to know, has anyone had been told they didn't have peyronie's disease according to a physical examination or ultrasound of penis while flaccid, ONLY TO FIND OUTER LATER THEY HAVE PEYRONIE'S WHEN THEY DID ULTRASOUND OF THEIR PENIS WHILE IT WAS ERECT?


Because some others here tell me i do have it but the reason why they don't see it on those tests is because i'm in the earliest stage of the Acute stage which is why they can't confirm it.


So in order to test if someone has peyronie's disease, the methods are only this right?

1. Physical Examination
2. Ultrasound of penis when flaccid
3. Ultrasound of penis when erect?

Is there any other methods? And does anyone know if the erect test shows a lot of things different than the flaccid test which i had already?

 

[Olive900]

A urologist did examine my penis and said i didn't have it. He did the ultrasound of my penis when FLACCID and said he didn't see anything wrong.


A member here tells me this though...

Your doctor sounds pretty typical of a lot of urologists, very arrogant and non-caring of patients' concerns. By all accounts from what you have told me its pretty obvious that you have peyronies.

Indeed the hourglass shape takes place for most of us sufferers when we are half erect, like after we ejaculated. And the reason your penis is shrinking is because the scar tissue/plaque is preventing adequate bloodflow to it that you use to get. It's he reason why we are experiencing such severe ED, blood doesn't flow easily into our penis like it used to when we got aroused. I don't even wake up hard anymore.

I wouldn't get the injections. You already have peyronies, there's a chance you could make it worse. The reason the ultrasound didn't detect anything while you were flaccid is because you are in the acute stage of peyronies, that is at this point you don't have enough built up scar tissue or plaque that will show up in an ultrasound. But you do have enough scar tissue to cause all the problems that you are currently going through.



Can someone here comment on this? It definitely sounds right and makes sense that could be the reason why the ultrasound of my penis when flaccid didn't detect anything. But someone else tells me that even if you are in the acute stage, the ultrasound would show some type of plaque. Is there a chance i'm in the earliest stage of acute stage if there is such a name for it which is why it didn't detect it for me? Is it because its just been 1 month which is why the ultrasound didn't show anything?

Can someone tell me what is the earliest time from when they had or heard of someone who have had an injury or thought they had peyronies and then had a urologist confirm peyronie's disease even in the acute stage? Is it not possible for me because its just been 1 month and it takes at least 2 months from injury till a urologist can confirm it? Because that is what i really want to know now. Has anyone heard of someone who thought they had peyronies and then went to a urologist and then had them confirm they had peyronies within 1 month after injury?

 

[DemOne]

A urologist did examine my penis and said i didn't have it.

End topic. You don't have it.

 

[Olive900]

DemOne, i understand what you are saying. But i just know something is wrong because the look of my penis has changed and i never in my life had this hourglassing and never ever had my penis not expand normally.



I just checked for other doctors similar to John Mulhall who is a peyronies expert/sexual dysfunction online and i found this person named Ridwan Shabsigh using a search engine and it showed 3 sexual dysfunction doctors total in New York.

I called his office and one of the receptionist asked me some questions. I said i think i have peyronies but a urologist examined me and did ultrasound of my penis when flaccid and it showed no peyronies. She said based on that, she said most likely i don't have it. However, i said i will go tomrorowo and do the ultrasound of my penis when erect but not sure 100 percent if i will do that or not.

The weird thing about this is after i said this, she said that the correct way to diagnose peyronies disease if Dr. Ridwan Shabsigh would examine me, is to only do an ultrasound of my penis while erect. I said isn't the ultrasound while flaccid good enough and she said well Dr. Shabsigh only does it when erect because the test when flaccid won't show everything like blood flow etc.

I'm bit confused here because most people say the ultrasound while flaccid will show whether or not a person has peyronie's disease or not but this receptionist said that Dr. Shabsigh who is one of the only 3 sexual dysfunction doctors in NY i found online, would only do the ultrasound while penis is erect to confirm.

Does that sound a bit strange? Because most people i spoke to here said ultrasound while flaccid is what is used and that the erect test is not necessary. I'm now thinking that i should take a risk and do the injection tomorrow because of this. But i find it weird because i don't see many people here mention they had ultrasound of penis while done erect is needed to show it...

 

[DemOne]

An ultrasound while flaccid will show scar tissue and Peyronie's disease. An ultrasound while erect will show Peyronie's disease and other issues that could be caused by obstructed blood flow.

When checking for Peyronie's, the erect test isn't necessary. I believe the receptionist, who's more than likely a nurse, believes that you may have something other than Peyronie's, which the erect test will likely show. Seeing as a Urologist said you don't have it, it'd be rare that you did, and rare for a doctor to not properly check as that opens themselves up to massive lawsuits.

 

[gizmo225]

Hey DemOne I have been following this for a while and I have something very similar to Olive. I will possibly be having an ultrasound done too but see, the only confusing thing is that there is no other known causes for penile deformity than peyronies.. or a mild form of it at least. That being said I have had these strange inproper erections and the hourglass for 6 mos now and no lump and erect it looks straight. Only slight shooting pain on occasion when flaccid. If it is not peyronies what the heck is it? Thank you for all the encouragement it has been pretty stressful.

 

[DemOne]

Absolutely no clue what it could be.