Okay what would you have him test you for? So far since all tests come back normal what test would you suggest?
I need help guys (ED getting worse)
- Thread starter UKGuy
- Start date
There are two types of ED, and being able to wake up with morning wood but have it go down instantly after waking up and you knowing, it's a clear sign of psychological ED. If the body is capable of getting and sustaining a boner (even in sleep), it's not a physiological issue.
Do you feel rushed or pressured when getting an erection? Are you afraid that you wont be able to keep it up or even get one? Are you letting those feelings take over your mind when getting a boner, or are you focusing on sexually stimulating thoughts?
Do you feel rushed or pressured when getting an erection? Are you afraid that you wont be able to keep it up or even get one? Are you letting those feelings take over your mind when getting a boner, or are you focusing on sexually stimulating thoughts?
A duplex ultrasound or an NPT. Both can show if this is an organic or functional problem.
That doc you saw seems confused. A normal blood test doesn't mean there is nothing wrong, it just means it's not heart disease or low testosterone. The next logical step is the doppler ultrasound as per the previous post. That's assuming that the urologist performed a full physical exam when you saw him: check for inguinal hernia, Peyronie's disease, enlarged prostate, bulbocavernosus reflex, etc. If he didn't then find yourself a new urologist! Btw, a GP has no business handling a case such as yours himself, he should refer you.
I'm not saying it's not in your head, but clearly you need to pull out all the stops in terms of medical investigations. I don't know much about the injuries you can get from PE as I don't practice it myself. But some of the stuff in these forums sounds like damaged/torn arteries, aorto-cavernous fistulas, and internal hematomas.
Also, you might find it difficult to get stuff done on the NHS. It might be best to go private and bear the cost yourself? The really important thing is to have your tests done by experienced people. Not everyone does penis ultrasounds on a regular basis.
My experience with urologists is similar. I've been through 5 so far, getting as much from each one as I could in terms of medical tests, in the face of uniform skepticism. So far we have found a tear in the urethra, which I've had to diagnose myself! (Cowper's syringoceles. It's pretty rare. Thank God for the internet). I've dragged the medical profession kicking and screaming all the way, so don't give up!
I'm not saying it's not in your head, but clearly you need to pull out all the stops in terms of medical investigations. I don't know much about the injuries you can get from PE as I don't practice it myself. But some of the stuff in these forums sounds like damaged/torn arteries, aorto-cavernous fistulas, and internal hematomas.
Also, you might find it difficult to get stuff done on the NHS. It might be best to go private and bear the cost yourself? The really important thing is to have your tests done by experienced people. Not everyone does penis ultrasounds on a regular basis.
My experience with urologists is similar. I've been through 5 so far, getting as much from each one as I could in terms of medical tests, in the face of uniform skepticism. So far we have found a tear in the urethra, which I've had to diagnose myself! (Cowper's syringoceles. It's pretty rare. Thank God for the internet). I've dragged the medical profession kicking and screaming all the way, so don't give up!
HI again guys. Well I guess I have two options right? Either go private and spend a fortune to try and get some better answers about my phsyical ED (although there is no guarantee much will come out of it) or just live with problem and try and find a woman/women who are understanding about my dysfunction.
What has given me some hope is I do know of one guy from the MattersOfSize forum (user name "tbirdy") who caused trauma to his penis through being too rough jelqing. He had "Venous Leak" like symptoms and could barely hold an erection at all. Even his chambers in the penis were deflated when erect. He supposedly got surgery to fix the ED but it ulatimately failed despite a brief return to normal erections he used to have. However the results of the surgery barely lasting a few weeks and he was a bit worse of than before the surgery. However he claims with him taking regular use of Viagra (like almost every night for at least for 6 months - a year) it cured him of the erectile dysfunction and he no longer needs Viagra for erections.
I am tempted to try this but Viagra is hard for me to get hold of as usually you need to get a doctor's approval and prescription to get it. There is online as well but how safe is it? I don't have a credit card though.
What has given me some hope is I do know of one guy from the MattersOfSize forum (user name "tbirdy") who caused trauma to his penis through being too rough jelqing. He had "Venous Leak" like symptoms and could barely hold an erection at all. Even his chambers in the penis were deflated when erect. He supposedly got surgery to fix the ED but it ulatimately failed despite a brief return to normal erections he used to have. However the results of the surgery barely lasting a few weeks and he was a bit worse of than before the surgery. However he claims with him taking regular use of Viagra (like almost every night for at least for 6 months - a year) it cured him of the erectile dysfunction and he no longer needs Viagra for erections.
I am tempted to try this but Viagra is hard for me to get hold of as usually you need to get a doctor's approval and prescription to get it. There is online as well but how safe is it? I don't have a credit card though.
A dangerous road you will travel. You are now becoming the doctor and using the interent to help cure you. Would you be doing the same if you had a heart condition? If you are convinced that your ed is physical then if you have any interest in getting better you may have to spend money and get more tests. Using the internet as your doctor may be cheaper in the long run but it can also kill you as well. Why not spend what you work for to get a proper cure? You want cheap, then you know what the old saying is; you get what you pay for. How much is it worth to you to get a diagnosis and a correct treatment? If it was me I'd spend whatever I had, but that's just me.
Stop right there. You think you have a venous leak. Blood and hormone levels DO NOT test for that condition. WTF is the urologist talking about!!!???
I know all about tbirdy--he did not just have "venous leak like symptoms"--he had venous leak--diagnosed. An awesome guy to be sure, but totally irrelevant to you at this point because you have NOT been diagnosed with venous leak. I'm really sorry that you're getting responses like that from "urologists." Where the hell did they get their degrees from? Find a reasonable urologist who will do the right tests. Anything else is a waste of time. I live in the US so I'm sorry but I can't tell you how to find a reasonable urologist in the UK. Good luck.
The OP's symptoms don't show any possible signs that there is a venous leak, which is more then likely why any good Urologist wouldn't waste money testing for such.
Just because the patient thinks there is a physical problem, doesn't mean a doctor is there to do what ever the patient tells them to do and run tests for something that is very likely not an issue.
kingpole
Retired Moderator, PEGym Hero
OK so if it is in your head lets do something about your head.
Are you prone to anxiety/depression?
Do you figet alot?
Wag your foot or both feet constantly?
Do you have cold hands and feet?
Do you worry a lot and have forboding thoughts?
Are you experincing a lot of fear?
Do you halucinate, hear voices, see things?
Are you prone to anxiety/depression?
Do you figet alot?
Wag your foot or both feet constantly?
Do you have cold hands and feet?
Do you worry a lot and have forboding thoughts?
Are you experincing a lot of fear?
Do you halucinate, hear voices, see things?
Sorry to hear about your struggles UKguy. I know what it's like to keep searching for answers and not getting any from doctors. I've come to realize that we, as patients, have the right to seek 1st, 2nd, 5th opinions. So if you're not happy with the care you get, keep going to see other docs man. But eventually, you yourself have to come to the realization that either you are misrepresenting your ED, or believe it or not, that the docs may be right.
It is completely possible you are misrepresenting your ED. Like if you feel you really have a problem that warrants expensive medical tests. Then why use descriptors like mild. Definitely mild ED doesn't warrant any invasive diagnostic procedures or treatments. So you just gotta do some thinking i feel. Think about what's going on in both heads and plan from there. Maybe repost your symptoms in a more objective way to us. That way you will know how to describe your symptoms better for doctors to understand you better.
Now if I was a urologist and you came into my office with symptoms you describe, to put it honestly, I would say this. You have ED that only occurs when you move out of bed. But when you stay still your tool works. Do you really want me to do invasive, costly tests for venous leak when it's unlikely you have venous leak and anyways I would never do the surgery? I would also say, I do agree we should do a NPT test because you are having symptoms. But if that's normal, I would ask you to see a psychologist who can help you more than i can.
I hope the above made sense and helps you out brother.
Steve
It is completely possible you are misrepresenting your ED. Like if you feel you really have a problem that warrants expensive medical tests. Then why use descriptors like mild. Definitely mild ED doesn't warrant any invasive diagnostic procedures or treatments. So you just gotta do some thinking i feel. Think about what's going on in both heads and plan from there. Maybe repost your symptoms in a more objective way to us. That way you will know how to describe your symptoms better for doctors to understand you better.
Now if I was a urologist and you came into my office with symptoms you describe, to put it honestly, I would say this. You have ED that only occurs when you move out of bed. But when you stay still your tool works. Do you really want me to do invasive, costly tests for venous leak when it's unlikely you have venous leak and anyways I would never do the surgery? I would also say, I do agree we should do a NPT test because you are having symptoms. But if that's normal, I would ask you to see a psychologist who can help you more than i can.
I hope the above made sense and helps you out brother.
Steve
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My friend had mild heart releated symptoms and the specialist told him he had a bug. He ran into a friend who told him that a mutual friend that had been told the same thing died the day before. So he went to a new doc and overstated his symptoms ,it saved his life.
Deflated glans and losing an erection within seconds are in fact "possible signs" that there is a venous leak. I'm not suggesting that this is the case here, only that he get the right tests.
From what I understand, venous leakage is associated with a lot of organic EDs, without being the primary cause. The first thing you would check out is whether sufficient blood makes its way up the penis in the first place - i.e. do a doppler ultrasound.
If you are going to use Viagra on a daily basis, then perhaps Cialis is a better choice, as its effects are more spread out in time. I was advised to take 5mg a day. But if the aim is to get the blood flowing in that area so as to promote healing, then taking a hot bath every day would be a good first step - and a lot cheaper as well. But both are a good idea: there is a fair chance that whatever it is that ails you will only be fixed by the body's own self-healing process, so you might as well start helping it along.
Btw, never buy any drugs online!
If you are going to use Viagra on a daily basis, then perhaps Cialis is a better choice, as its effects are more spread out in time. I was advised to take 5mg a day. But if the aim is to get the blood flowing in that area so as to promote healing, then taking a hot bath every day would be a good first step - and a lot cheaper as well. But both are a good idea: there is a fair chance that whatever it is that ails you will only be fixed by the body's own self-healing process, so you might as well start helping it along.
Btw, never buy any drugs online!
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These symptoms don't necessarily mean you have a leak either. There was a thread on thunders discussing soft glans. There was one post with quotes from urologists discussing soft glans. These were doctors from the ISSM. One guy treated several patients with the condition:
Young guys. Trauma. Soft glans. Some ED. They found the right doctor and had excellent results. Maybe you have something physical going on, maybe not. But there's a good chance you can find someone to help you. Don't give up. Good luck.
.
Young guys. Trauma. Soft glans. Some ED. They found the right doctor and had excellent results. Maybe you have something physical going on, maybe not. But there's a good chance you can find someone to help you. Don't give up. Good luck.
Thanks everyone for your advice there is quite a bit to discuss here so..
Erectile Dysfunction symptoms:
Lack of spontaneous erections often completely absent
Glands won't go firm and don't fully expand when aroused so I can't get fully "rock hard"
Weaker erection overall (probably due to damaged and deflated glands), erection doesn't reach full size. Lack of "throb".
Erection will start to decrease immediately (like almost the instant I get an erection) unless I keep constant physical stimulation going or I keep flexing my pc muscle in an effort to try and hold blood in my penis.
Penis in flacid state feels firmer (less elastic) it feels hard in places when soft
Morning erections are infrequent I loose my erection as soon as I get out of bed or do anything.
Ejaculation seems a bit weaker I don't shoot much like before rather it dribbles out.
I don't think so actually I would say I am the opposite. You see I did a lot of meditation to help with my racing thoughts and confidence issues and meditation helped me a lot in having a clearer and more calm state of mind I am almost like a Zen monk in this regard
. I don't really have anxiety trying to get an erection or anything like that at all I know is I likely have a physical problem I'm sure of it. I wish it was all in my head because if it honestly was I would of tried to get laid by now even by an escort. These erection problems have no doubt held me back from losing my virginity I know it's kind of an excuse but it is a good and legitimate reason.
I am willing to pay and see a good urologist near me (preferably) in London but I doubt I'll be able to do this on my own without any help.
Cheers
Well perhaps moderate is more accurate and not severe either because I can still get an erection. I will detail the issues I have again.
Erectile Dysfunction symptoms:
Lack of spontaneous erections often completely absent
Glands won't go firm and don't fully expand when aroused so I can't get fully "rock hard"
Weaker erection overall (probably due to damaged and deflated glands), erection doesn't reach full size. Lack of "throb".
Erection will start to decrease immediately (like almost the instant I get an erection) unless I keep constant physical stimulation going or I keep flexing my pc muscle in an effort to try and hold blood in my penis.
Penis in flacid state feels firmer (less elastic) it feels hard in places when soft
Morning erections are infrequent I loose my erection as soon as I get out of bed or do anything.
Ejaculation seems a bit weaker I don't shoot much like before rather it dribbles out.
I would actually try Viagra and on a regular basis even I had to rely on it for the rest of my life because I doubt I would ever get a penile implant (hopefully it won't come to that). The thing is though here in the UK anyway I can't take Viagra or any other ED pill unless my GP gives me approval to take it and of course being 26 years old most doctors say I'm way too young to use it. Still though I would try it.
I don't think so actually I would say I am the opposite. You see I did a lot of meditation to help with my racing thoughts and confidence issues and meditation helped me a lot in having a clearer and more calm state of mind I am almost like a Zen monk in this regard
. I don't really have anxiety trying to get an erection or anything like that at all I know is I likely have a physical problem I'm sure of it. I wish it was all in my head because if it honestly was I would of tried to get laid by now even by an escort. These erection problems have no doubt held me back from losing my virginity I know it's kind of an excuse but it is a good and legitimate reason.I am willing to pay and see a good urologist near me (preferably) in London but I doubt I'll be able to do this on my own without any help.
Cheers
UKguy, i found this old post of yours after posting my previous post. I think kegels could be your answer. They worked great for you in the past, and while you may not like doing them, they are your best chance of doing things naturally.
When i did them right, my experience with kegels has been really good as well. I do 10 second holds and 10 seconds break. and i try to do them for 10 minutes, 3 times a day. Since I been doing that, I have been having firmer erections. Also, my girl notices that I'm keeping erections better than I was able to. Now I have similar problems as you and thought and still think that I have venous leak. But, since kegels been working so well...maybe I needed to strengthen the pc muscle.
what does it have to do with you? Well, it worked for you in the past. Do it again, and force yourself to a kegel routine, and see if it helps. I have a sneaking suspicion that in a week, you will see improvements.
Penile Implant
Penile Implant
HI again guys well I have been here now for a longtime my main reason to be on here is to see If I could naturally cure my ED (of which I have had for nearly 7 years now). I don't want to keep repeating myself but 6-7 years ago I injured my penis a few times. 1st time when jelqing I think I was too erect I lost my erection and found the glands wouldn't inflate properly not as much as before. Yet I was still able to maintain a erection nornally (I think). Then I stupidly tried some stretches and again I must of stretched a bit too hard, my penis immediately shrunk up really small and felt quite hard it scared me to death but witin in a hour or so it went back to normal. Since then though I have had noticabely weaker erections, hard to maintain them and I feel it's got worse as the years has gone on. I'm at the point now where when I get an erection I will loose it instantly litterally as soon as I get any sort of erection I will loose it straight away. Spontaneous erections are quite rare but I still get them but they're very weak, If I see a woman I'm attracted to I get the rare erection but it's a very weak partial erection. Morning erections I get them still as well but again they're not that hard and I loose any sort of hardness as soon as I get out of bed or even move.
Now I have tried some things, exercise, "healthy" diet, kegels etc none of which really helped although with kegels I can get much harder erections but the head still remains so deflated (the Corpus Spongiosm doesn't hold blood well) and I still loose my erection fairly quick. It's weird but kegels seem to give me a bit of "boost" in erection quality but my erection quality by default is weak and pathetic no lasting ability at all. I can only maintain an erection with near constant hand/physcial stimulation and even then my erection isn't all that rockhard and the glands still don't inflate very well. Without physical stimulation of my penis it will start to go limp instantly. I'm not even talking a few minutes here but seconds. I don't think I have nerve damage though because I respond to physical stimulation or porn but it's just a weak reponse and erection like I said.
I have come to the conclusion that I do indeed have the dreaded "Venous Leak Syndrome" I have all the classic signs, however I haven't been diagnosed with it officially but even If I had the cures for this disorder are almost non existant.
Now as much I hate/am embarrased and ashamed about penile implants and getting one I honestly think If want to have any sort of sex life I may have to face up to reality that I may need one. I'm still yet to even have sex. Yeah I'm only 26 years old but I believe I have done irreversible damage to my penis and it has been at least 6 years now since I injured ir. I think like others who are in the same situtation also wanted to believe it would heal naturally and unforunately (at least in my case) it hasn't. I also have the "hard flacid" firm feeling penis and I'm sure it's from that day I stretched a bit too hard (I never felt any discomfort though). My worry is the firm feeling is due to internal scar tissue also my flacid penis feels less elastic and more rubber like.
What do you guys think I hate the idea of having an artificial erection for ever more not just becasue of the embarrasement of it but also because feeling lses of a man. However the more time and the years go on the more I'm convinced I need an implant to have a sucessful sex life unless I remain limp and a virgin forever but I don't think I could psycholigially cope with that. I'm trying to remain positive but I'm loosing hope and I don't think I can fool myself forever I think my dick is beyond repair.
I would like to hear from anyone else who maybe in the same situation younger guys who may of got an penile implant.
Thanks
Penile Implant
HI again guys well I have been here now for a longtime my main reason to be on here is to see If I could naturally cure my ED (of which I have had for nearly 7 years now). I don't want to keep repeating myself but 6-7 years ago I injured my penis a few times. 1st time when jelqing I think I was too erect I lost my erection and found the glands wouldn't inflate properly not as much as before. Yet I was still able to maintain a erection nornally (I think). Then I stupidly tried some stretches and again I must of stretched a bit too hard, my penis immediately shrunk up really small and felt quite hard it scared me to death but witin in a hour or so it went back to normal. Since then though I have had noticabely weaker erections, hard to maintain them and I feel it's got worse as the years has gone on. I'm at the point now where when I get an erection I will loose it instantly litterally as soon as I get any sort of erection I will loose it straight away. Spontaneous erections are quite rare but I still get them but they're very weak, If I see a woman I'm attracted to I get the rare erection but it's a very weak partial erection. Morning erections I get them still as well but again they're not that hard and I loose any sort of hardness as soon as I get out of bed or even move.
Now I have tried some things, exercise, "healthy" diet, kegels etc none of which really helped although with kegels I can get much harder erections but the head still remains so deflated (the Corpus Spongiosm doesn't hold blood well) and I still loose my erection fairly quick. It's weird but kegels seem to give me a bit of "boost" in erection quality but my erection quality by default is weak and pathetic no lasting ability at all. I can only maintain an erection with near constant hand/physcial stimulation and even then my erection isn't all that rockhard and the glands still don't inflate very well. Without physical stimulation of my penis it will start to go limp instantly. I'm not even talking a few minutes here but seconds. I don't think I have nerve damage though because I respond to physical stimulation or porn but it's just a weak reponse and erection like I said.
I have come to the conclusion that I do indeed have the dreaded "Venous Leak Syndrome" I have all the classic signs, however I haven't been diagnosed with it officially but even If I had the cures for this disorder are almost non existant.
Now as much I hate/am embarrased and ashamed about penile implants and getting one I honestly think If want to have any sort of sex life I may have to face up to reality that I may need one. I'm still yet to even have sex. Yeah I'm only 26 years old but I believe I have done irreversible damage to my penis and it has been at least 6 years now since I injured ir. I think like others who are in the same situtation also wanted to believe it would heal naturally and unforunately (at least in my case) it hasn't. I also have the "hard flacid" firm feeling penis and I'm sure it's from that day I stretched a bit too hard (I never felt any discomfort though). My worry is the firm feeling is due to internal scar tissue also my flacid penis feels less elastic and more rubber like.
What do you guys think I hate the idea of having an artificial erection for ever more not just becasue of the embarrasement of it but also because feeling lses of a man. However the more time and the years go on the more I'm convinced I need an implant to have a sucessful sex life unless I remain limp and a virgin forever but I don't think I could psycholigially cope with that. I'm trying to remain positive but I'm loosing hope and I don't think I can fool myself forever I think my dick is beyond repair.
I would like to hear from anyone else who maybe in the same situation younger guys who may of got an penile implant.
Thanks
what do u mean by ""stretched a bit too hard""?? and did u perform streching and where did u put pressure?? i am asking coz im also doing streches on my pelvic floor area so i want to make sure not to repeat what u went through...
first of all..u seem to be a virgin...this means u need to try sex to be able to judge wther u can do intercourse or not...
second..if u can get erection using stimulation..using hand..then when having sex ur stimulating naturally...ur problem can also be psychological as well..as u seem to be convinced that u cant have sex even before attempting it..im not sure if u did or not...i failed first three attempts but finally could manage to penetrate....HOW MANY UROLOGISTS DID U VISIT??WHAT DID THEY SAY ABOUT YOUR SITUATION??DID THEY SUGGESTED PENILE IMPLANT??
third, u may have a kind of penile fracture...if u have then u just need to perform a surgery...
i also think i may have penile fracture..i get erection but my penis dsnt raise that high and also i cannot maintain my erection that much without stimiulation...here what i have shared my problem in one of the threads...
"" i think i also have a penile fracture but maybe not that badlyy... i get erection fine with stimulation...without it it goes fast..nd while standing it goes faster....my penis also doesnt rais up as used to be and it is same as ur 9oclock type...i think i injured myself when i was 15..now im 29..i used to do bedfuck type masterbating..pressing the erect penis against the floor or bed or sqeezing it between legs...my orgasm is fine nd ejaculation is also good...i also have difficulty starting peeing...i have to push very hard to start peeing....sometimes when i masterbate my penis get like this if i stop masturbating in middle though it happens very rare lets say 1 out 10..have a look at the picture..and see if ur penis get like this or not..
Photo of the Month for September 2009 | Maricopa Emergency Medicine
it say penile fracture occur due to injury or trauma on (tearing the tunica albuginea.) and i searched google and the best way to find out is through MR Imaging of Acute Penile Fracture..you can read here..
Medscape: Medscape Access
MR Imaging of Acute Penile Fracture1
first of all..u seem to be a virgin...this means u need to try sex to be able to judge wther u can do intercourse or not...
second..if u can get erection using stimulation..using hand..then when having sex ur stimulating naturally...ur problem can also be psychological as well..as u seem to be convinced that u cant have sex even before attempting it..im not sure if u did or not...i failed first three attempts but finally could manage to penetrate....HOW MANY UROLOGISTS DID U VISIT??WHAT DID THEY SAY ABOUT YOUR SITUATION??DID THEY SUGGESTED PENILE IMPLANT??
third, u may have a kind of penile fracture...if u have then u just need to perform a surgery...
i also think i may have penile fracture..i get erection but my penis dsnt raise that high and also i cannot maintain my erection that much without stimiulation...here what i have shared my problem in one of the threads...
"" i think i also have a penile fracture but maybe not that badlyy... i get erection fine with stimulation...without it it goes fast..nd while standing it goes faster....my penis also doesnt rais up as used to be and it is same as ur 9oclock type...i think i injured myself when i was 15..now im 29..i used to do bedfuck type masterbating..pressing the erect penis against the floor or bed or sqeezing it between legs...my orgasm is fine nd ejaculation is also good...i also have difficulty starting peeing...i have to push very hard to start peeing....sometimes when i masterbate my penis get like this if i stop masturbating in middle though it happens very rare lets say 1 out 10..have a look at the picture..and see if ur penis get like this or not..
Photo of the Month for September 2009 | Maricopa Emergency Medicine
it say penile fracture occur due to injury or trauma on (tearing the tunica albuginea.) and i searched google and the best way to find out is through MR Imaging of Acute Penile Fracture..you can read here..
Medscape: Medscape Access
MR Imaging of Acute Penile Fracture1
