You can't access that thread because it starts with digits: "11 Hard Flaccid Full Recovery Cases" When we moved to a new forum software platform a few years ago any thread title that started with a digit misdirected.
But you can still access that thread on the Internet Archive. This link will take you there. Give it a minute to load. This is exactly as PE Gym appeared in 2017 when the post was originally made. The entire thread his here:
Hard Flaccid Full Recovery Cases. Thanks to the stories owners ... "The end of hard flaccid...." Reason skyping with the gf and I ended up
web.archive.org
I would think those spinal surgeries others are talking about would involve a specific diagnosis from a neurologist where nerves are compressed in the spine. I hope guys aren't trying any experimental spinal surgeries. It sounds scary. What do you mean by "doom theories"?
I think it's good that you have an open mind to the stuff guestbo is talking about. I've seen a lot of guys who report hard flaccid symptoms very resistant to the idea that unconscious emotions or some psychological glitch could cause physical symptoms. But I notice in some recovery stories there are guys who learn to manage the mental/emotional side of the HFS experience and then things start getting better. The mind and body are connected in intimate ways and I think that's the point.
I have a friend who once had a problem in his neck that went down his arm into his hand. It caused numbness and pain in his hand and he was traumatized because he's an accomplished musician and it made it impossible to play his instrument. This battle went on for years. He solved it after he found a book by Dr. John Sarno. Sarno wrote a book called "The Divided Mind: The Epidemic of Mindbody Disorders." It should be easy to find. My friend experienced what is called "the book cure." This doesn't happen in all cases, but what it means is that when he read this book a lightbulb went on and he spontaneously started having improved symptoms. He doesn't have this issue anymore.
I've tried to get guys with hard flaccid interested in the "Dr. Sarno method for psychosomatic symptoms" because the more I learn about HFS, the more it seems to be exactly the sort of psychosomatic (mind-body) syndrome that Dr. Sarno has been able to help people with. Tension Myositis Syndrome. This is the term Sarno uses for his theory of what's going on in these cases. The mind unconsciously causes a set of symptoms in a region of the body.
One interesting thing about these syndromes is that they tend to become cultural trends. Suddenly in the 1970s or whenever, everyone seemed to have back pain. Hard Flaccid Syndrome is a very new syndrome and suddenly about 10 years ago or so there was a rash of men self-diagnosing the problem. This sort of thing is typical of the way these mind-body syndromes emerge.
There are other features that point to a mind-body central cause too, but I'll let you have a look at Sarno's ideas and see if any of it adds up for you.
One of the interesting things about these mind-body syndromes is that exercises and other things that treat the physical symptoms or attempt to diagnose physical causes can actually prolong the symptoms because that focus avoids the true central cause. I should also note that Sarno is not the first to explore psychosomatic illness. There's a very long history - like hundreds of years - of things like this on the medical record. It's just not how we usually think in modern times.
It's easy to misunderstand what Sarno is really getting at, so you might have to spend some time warming up to his ideas. I would recommend reading the book and also using whatever you can find online. There are videos on YouTube where Sarno is giving lectures, interviews, and other people talking about how they cured long standing mind-body symptoms.
Here's a good start. They talk a lot about back pain in this video, but what they are talking about could apply to HFS too:
There's also this:
Are you experiencing physical symptoms that seem to have no apparent cause? You may be suffering from ...
www.sarnoclinic.com
Take some time with this Sarno stuff and let me know what you think. I really don't know what else to suggest. I've always hoped that somebody with HFS would take an interest in this and maybe find something helpful in it.